Friday, September 6, 2019

I Saw a Picture of You...

    Once again, I am moved to write about death, and once again, to no surprise but definite outrage, it involves that bastard, cancer. Specifically, I am writing of my work colleague and friend, Lynn Martens, who died after a long fight with cancer a couple of weeks ago.

     I first knew Lynn in professional terms shortly after I started working for the Erie County Department of Social Services in July 2014; I am the cashier in the accounting division, while Lynn was a senior investigator in Social Services’ Special Investigations Division (collections, etc.). Lynn was friendly if quiet when I first met her, mainly through the telephone contacts we had, and always polite, well informed, hard working and way more than competent. In a position that required her to answer concerns from our office that we were often unable to access the proper information to handle, were not authorized to handle or never thought to be trained to handle as well as present us with financial items sent directly to her that were often complicated if not messed up, her approach and attitudes were pretty much always on target.

     She also began being the person from her department who would visit our office every afternoon to deliver checks and other financial information and to pick up similar items for her division to research and probably resolve, as well as answer unexpected questions and concerns. Between these visits and us seeing more of what her job entailed and her seeing more of what our jobs entailed, we got to be friends and often joked about situations each department encountered.

     Unfortunately, in 2017, Lynn started telling me about not feeling well and her health situation worsening. She never said the word “cancer” directly to me for a while, but described treatments and ailments that would lead many people, and especially me, the son of a more than 20-year cancer survivor at that time, to easily deduce that she meant cancer. That summer, she told some of us that she as taking a medical leave of absence for surgery, radiation and chemotherapy treatment, leaving no question about her health issue. We wished her well and I told her I looked forward to her return, something she said would take months but she was committed to doing.

     During this time, in October 2017, I suffered my heart attack and in November 2017 underwent lifesaving, massive open-heart surgery at the Cleveland Clinic. I returned to work in January 2018, and Lynn returned a few weeks later. I was still a bit pale and very thin (losing more than 40 pounds and eventually gaining about 20 of them back), and Lynn was a bit thin, pale and had lost most if not all of her hair and wore hats and head pieces of varying styles. She had heard of my health travails, so we immediately hit it off again and in new ways, both of us realizing that certain situations and issues just weren’t worth worrying about or paying much attention to and that we were sharing a survivors’ bond. We easily spoke of times and events that pointed to us being at the deciding point, between living and dying, and how we were doing absolutely as much as we could to assist in our doctors’ efforts to help us stay alive. Topics included such things you can’t talk to just anyone about such as trying to sleep the night before life saving or fatal surgery, what do you say to your spouse before they leave before you go under anesthesia for surgery, trying to figure out how to truly pace yourself during recovery, always fearing that something could go wrong even after surgery, trying to figure out when something was simply an old or new pain or if it was a symptom of something worse, and how to explain so much of this to people never in your situation, or even if you should try. We both expressed how fortunate we were to have great support from our spouses and families (my wife, Val Dunne, and my medical team are the reasons I am still here, and my sister Heather lent inestimable support and love).

     We both continued to recover and gain back weight, color and strength, at least for a while. Lynn plateaued a bit, never gaining her strength back as well as I did, and she never seemed to be 100 percent rid of cancer symptoms. Her hair grew back a bit more, but never as long as her not-too-long style in the past. A few months later, as we felt the dread that her cancer was returning, it did. Lynn decided she needed to give more time and health to her continuing battle with cancer, and because she had worked for the county more than long enough, she put in her retirement papers. We talked about her next fight and how she came back and recovered the first time, but she didn’t put as much faith behind a recovery this time, hoping she could make certain goals and warning me not to get my hopes up too high about her. This was an absolute punch to the gut, but I kept up as much of a positive feedback approach as possible. She announced this a few weeks before her actual leaving, which I thought would give me enough time to come up with something to say that wouldn’t be cloying or kind of betraying the honesty in which Lynn and I had discussed medical matters.

     But when that day arrived, the words hadn’t really come to me, but I tried. I wanted to say something that reflected our serious and medically personal talks, but nothing grim or unnecessarily sad. Of course, I also wanted them to be honest and intelligent; in other words, while I didn’t want them to sound like it, something proper to say to a friend who may very well be dying and who you may never see again. It’s not like there is any AP Stylebook, Elements of Style or other guides to this situation, only humanity and attempted grace, something to strive for regardless our chance of success.

     As always, Lynn was conscientious and conducted her business first, which I decided to handle from our department’s side, even though anyone in the office could have. I could tell people were watching and listening to us while trying not to look like they were doing so, as everyone knew Lynn was retiring for health reasons, although not everyone yet knew the extent of her cancer’s progress. As it was time for her to leave and actually finish some work on her last shift, I looked at her through the thick plastic windows of the counter at which she stood. In a voice cracking a bit, I told her, “let’s not make this farewell. Let’s make this the last thing I say to you for now and we’ll talk again down the road.” It was hard to say not only because the situation was making my voice crack, but also because I could see tears in Lynn’s eyes. We both knew that this was almost definitely farewell and that there really was no chance we would get to talk in this life again, but one thing I learned during my health crisis and have learned from Val’s continuing health battles is that there needs to be, there must be, hope. Regardless how bad Lynn’s cancer was, regardless how bad my heart situation was, you can’t take hope away from someone. Hope may not be a medication or procedure, but it can be just as powerful when you want or need someone to keep fighting or to want to keep fighting and searching for a cure or something to delay that fucking bastard death. I couldn’t give Lynn medication, I couldn’t perform a procedure, I couldn’t remove a tumor, but I sure as hell wouldn’t steal away any last hope of recovery or even extended life; I was not going to toss any proverbial shovels of dirt on her grave while she was still standing and fighting, if even just by living. Anyway, she smiled, knowing my discomfort as well as the reality she was living, and quietly said, “sure, this won’t be goodbye, not as long as I can help it.” She quietly walked away, and I walked back to my desk and buried myself in some computer work; we have neither cubicles nor walls in our office, so there is basically no privacy in the office.

     Several months later, a couple of weeks ago, we heard that Lynn was on the last part of her final journey and she died two days later, a little more than a month ago. A week or so after that, I saw her death notice in the Buffalo News, with a small photograph of her, healthy and smiling. That is how I am going to remember Lynn, happy and enjoying life, but also recalling how she helped me find a way through the toughest part of mine.

     The similarities in the timing of our medical crises, how we handled them and could talk about it and one of us dying while the other one lives and gets healthier is something I frequently run through my head. It doesn’t matter whether or not it is healthy or useful, I feel survivor’s guilt in this and other situations. Why did my critical health situation result in what medical professionals at the Cleveland Clinic called a miracle (actually two, my arriving there alive and my surviving the surgery) and my continued survival, while Lynn’s critical health situation led to a temporary recovery, an unfortunate recurrence of her cancer and, despite and all-out fight, her death?  Indeed, there have been too many recent deaths among my family and friends for me not to feel this way, no matter if there is any real sense of relevancy to it; survivor’s guilt manifests itself in many ways. Cancer in particular has taken too many family members and friends who Val and I consider family, My much too-young and always full of life niece Colleen Hosey Tucker died of cancer in her 30s in the last year, leaving a husband Michael and daughter Jessica; our very good friend Elayna Ratchford Buyer died after beating back cancer in previous bouts, leaving her husband, my longtime college friend Michael Buyer; Jill Manias, not only mother of our great friend Alex Manias but an incredible friend to Val and I as well, lost her battle with cancer, also leaving her husband, another wonderful person, Giles. Within the last couple of years or so, we lost a great friend who touched so many people in great ways and was an absolute lover and supporter of music, Susan Tanner, who is survived by her husband and another great friend, Marty Boratin. Sadly, this is no doubt a partial list. While she was a more than 20-year cancer survivor, the death of my loving mother, Sheila Connelly Hosey, in June, two days shy of her 89th birthday, has left assorted mental scars I’ll be peeling sway for years. As with Lynn’s health situation, I sometimes compare mine to these relatives and friends, wondering why I at least temporarily escaped the grim reaper and have this second chance at life.

     Fortunately, I do have some people I can genuinely and explicitly discuss these things with, starting with my incredible wife Valerie Dunne. We have been friends since 1985, started dating in 2000 and were married in 2002, and she has been and is the confidant, supporter, friend, lover and spouse I could only have dreamed to have had. She has been with me every step of the way, including the darkest ones such as being discharged from a local hospital to home without a referral to anywhere else after my surgery could not be done because of the detection of a torn aorta by my anesthesiologist. She never left my side as we traveled to the Cleveland Clinic for my declaration as being a “miracle” for getting there alive and for surviving my massive open-heart surgery. I’ve told her how amazing it was to see her every day before and after the surgery, especially when I slowly came out of the anesthesia that knocked me out for more than a day. My wonderful late father, Edward, was a quiet, sometimes seemingly secretive man, much of it from his military intelligence training as well as nature; I sometimes would act the same in the past, while normally being much more open. With Val, I can be 100 percent open, discuss my worst fears and confusion and always receive honest, thoughtful, supportive insight. For those who aren’t aware, Val has lived with and fought multiple sclerosis for more than 25 years, so she has certain insight into many of the concerns I have come to more recently, and I am a grateful listener. Because of the caregiver side of me, I have had some great, supportive, eye opening discussions with a friend, Sherry Brinser-Day, who knows about much of what I went through and the many thoughts and feelings I have as a survivor and caregiver because she is the so far successful wife of a heart transplant recipient and is also a successful mother, social services style worker and until recently, roller derby skater (and herself has survived medical crisis). There are some things we feel and do and try to handle that another person not experienced in these areas may not understand or take in a manner not intended. One of our most interesting discussions was how we both realize we don’t always take care of ourselves and our needs as best we should, almost feeling guilty or selfish if we do something for ourselves when we feel we could be doing it for our spouse or her children. It’s not that we necessarily feel trapped or even strongly obligated to act this way so often, but we do feel a responsibility as well as a real joy at helping someone like our spouses be their best when possible and to give then as much independence as possible (certainly my lovely wife Val has much of that and I don’t want to take too much responsibility for all of her accomplishments).

    I realize that the survivor’s guilt will continue to be something I deal with on several levels. I will always wonder why I made it to the Cleveland Clinic in time, before my heart attack and other issues were so much worse or had even killed me, while other people never got that chance. I am eternally grateful for the lifesaving medical and personal care I received there and every moment I have had since my surgery there with Val, Harold, family, friends, colleagues, writing and music. I hope I honor those who didn’t get the opportunity I had, the miracle as it were, to continue living, creating, loving and even feeling pain, annoyance and loss. Speaking to other friends and family who have undergone these and similar medical situations, and to some friends who have survived combat, I realize that the time I have lived since the surgery and any further time I have is pretty much bonus time, is kind of playing with house money, and I intend to play as long as that bank remains. I also feel I owe it to people who did not get the chance I had, who succumbed to their heart ailments, cancer, diabetes, emphysema, vehicle accidents, violence, accidents, Alzheimer’s and other conditions, to make my life, my living worthwhile and worthy of their memory and efforts. People like Lynn, like Elayna, Colleen, Susan, Jill, Joseph Natale, Tim Moran and others showed me how to live and sadly how to die with dignity and purpose, and I owe them the respect and love of living a good life, a vital life.

     I sit here writing at my computer in the chair and at the desk I was at October 21, 2017, when I suffered my heart attack; if I look down, I can see the start of my scar, my “zipper,” from my open heart surgery. I have Harold laying at my feet and I can hear Val working in the studio. I don’t need any more reminders of how fortunate I am or of how much others have lost.